San Antonio Girl Battles Rare Disease: Community Rallies for Charli's Gene Therapy Trial
May 19, 2025
Charli Ashcraft, a 4-year-old girl from San Antonio, is battling CLN6 Batten Disease, a rare and terminal condition often referred to as childhood dementia.
Initially misdiagnosed with autism, Charli's condition was identified early, which is crucial for seeking effective treatment.
She is currently the only child in San Antonio diagnosed with this disease and has been accepted into a gene therapy trial in California scheduled for later in 2025.
Charli's mother, Stevi Ashcraft, emphasizes the importance of community support in their fight for a cure, noting that the disease leads to the loss of developmental milestones and cognitive impairment.
Leah Garza, Charli's Pre-K teacher, has expressed her commitment to supporting Charli and is informing her classmates about the importance of helping her.
To raise funds for Charli's treatment and to raise awareness for Batten Disease, a fundraising event is planned that will include t-shirt sales and food plate sales.
This fundraising event is scheduled for May 24, 2025, at Raymond Russell Park, with all proceeds directed to a relevant foundation to support Charli's treatment.
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