ALS United's Collaborative Network Accelerates Research and Advocacy Amid Federal Funding Challenges

December 30, 2025
ALS United's Collaborative Network Accelerates Research and Advocacy Amid Federal Funding Challenges
  • A centralized research program guided by the ALS Network aims to maximize impact by reducing infrastructure costs, eliminating duplication, and directing more funding to promising science, with rapid support for innovative projects and accelerated global efforts toward treatments and a cure.

  • This collaborative funding and centralized coordination are designed to speed progress in treatment, prevention, and understanding of ALS, drawing on decades of leadership and the Scientific Advisory Committee.

  • ALS United is a long-standing collaborative network rooted in the national ALS movement, operating alongside the ALS Network (formerly ALS Golden West) with a mission to end ALS.

  • ALS United comprises independent nonprofit organizations that together serve roughly half the U.S. ALS population, providing local support, funding research, and advocating for supportive policies under the motto “Together, we end ALS.”

  • ALS United Greater New York operates within the broader ALS United network, supporting people with ALS and their families, funding critical research, and advocating for policies across the United States.

  • The press release includes media contact information and links to learn more about ALS United and the ALS Network.

  • Media inquiries can be directed to Eric Beikmann at [email protected] for more information.

  • The ALS Network (formerly ALS Golden West) partners with the ALS community to drive prevention, treatments, and cures and to improve access to quality care, with operations spanning California, Hawaii, and beyond.

  • In 2025, ALS United Greater Chicago increased its funding for ALS research and coordinated with 11 other ALS United member organizations to build a robust portfolio of research innovation grants.

  • Kristen Cocoman, President and CEO of ALS United Greater New York, advocates for collaborative funding to speed progress and amplify impact in ALS research, especially amid potential federal funding cuts.

  • The expanded funding occurs despite federal budget pressures, aiming to sustain momentum in ALS research by prioritizing high-impact scientific discovery and focusing resources on critical areas.

Summary based on 4 sources


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