Urgent Need for Autism Diagnosis in UK's Aging Population, Experts Warn
August 29, 2025
A significant majority of autistic adults aged 40 and above in the UK remain undiagnosed, with estimates suggesting over 89% of those aged 40-59 and more than 96% of those 60 and older have not received proper diagnosis or support.
This high rate of underdiagnosis means many older autistic adults are at increased risk of social isolation, poorer health, and age-related conditions such as Parkinson’s, arthritis, and heart disease.
Experts stress the urgent need for a lifespan approach to autism research and healthcare, emphasizing tailored services and social supports to improve quality of life for aging autistic individuals.
Older autistic adults face additional challenges including difficulties with employment, social relationships, and maintaining a good quality of life, with strong social support being vital for better outcomes.
Autism is a spectrum with core features like differences in social communication and repetitive behaviors, which can contribute to social isolation and health risks, especially as individuals age.
Advocates are calling for increased government funding to enhance diagnosis services and ensure timely support for autistic people and their families to improve overall well-being.
Major life transitions such as retirement and moving into care homes pose significant challenges for older autistic adults, often causing stress and impacting mental health.
Research focusing on autism's impact on older adults is limited, with only 0.4% of studies dedicated to this age group, hindering the development of targeted policies and services.
Summary based on 5 sources
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Sources

The Guardian • Aug 28, 2025
Older autistic people need more help after years of misdiagnosis, review finds
Medical Xpress • Aug 28, 2025
Around 90% of middle-aged and older autistic adults are undiagnosed in the UK, review finds
BBC Science Focus Magazine • Aug 28, 2025
97% of autistic adults over 60 are undiagnosed – and it’s massively impacting their health
Oxford Mail • Aug 29, 2025
Most autistic people over 40 are undiagnosed, research suggests